IACR Patient + Public Involvement

What is Patient + Public Involvement (PPI)?

PPI is research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

IACR Council PPI Members

The IACR Public & Patient Involvement (PPI) has six members on its council.

Three members are people who have a lived experience of cancer, alongside three who are working in cancer research space on the island of Ireland.

Prof. Patrick G Johnston Award

Every year six early stage cancer researchers present their research to a live audience during the annual IACR Conference.

IACR PPI help them prepare their lay presentations at a communications workshop before the conference.

How do you get involved in PPI?

Visit these organisations who are recruiting PPI to be involved in their research.

Patient Voice in Cancer Research

The Patient Voice in Cancer Research (PVCR) brings cancer researchers and those with a lived experience of cancer together.

Irish Cancer Society

The Irish Cancer Society research department are seeking PPI representation from individuals affected by cancer to participate in their research processes.

All-Island Cancer Research Institute (AICRI)

The overall aim of AICRI is to make science work for the patient, for society and for the economy.

Breakthrough Cancer Research PPI

Breakthrough Cancer Research aim to involve patients and the public in research through their Public Patient Initiative.

Insights from our IACR PPI members

What does the IACR represent to you? 
The IACR is a network of scientists and researchers who are passionate about their work and are always striving to create better outcomes. It connects clinicians, researchers, and patients across the whole island of Ireland. It supports young researchers and rewards excellence in the field of Cancer Research.

What does Patient Involvement mean to you?
Patient Involvement means giving back, being a voice that can be heard, helping researchers understand the patient perspective from someone who has lived with and beyond Cancer. By being involved you become connected to a large group of people who are coming to the table from all different walks of life, each one as passionate as the other about their work and the opportunities that can be gained through the collaborative process.

Kay McKeon, IACR PPI

What does the IACR represent to you? 
IACR represents an opportunity to see first hand the amazing research that is taking place here in Ireland, also as a patient it is an important opportunity to support this research and break down barriers between researchers and the public.

What does Patient Involvement mean to you?
The mantra goes “nothing for us without us” that is the essence of what PPI means to me as a patient and an advocate, without the input of patients for whom the research is ultimately supposed to benefit, valuable resources and time can be wasted, always find a way to engage with your target subjects before, during and post commencing your research, and to patients don’t be afraid of “what you don’t know, embrace what you will learn from engaging”.

Kay Curtin, IACR PPI 2018-2021

What does the IACR represent to you? 
IACR represents a group of researchers, at different points in their research career, but with a common bond of passion for research. I can see it is more than “just a job”, it is a passion to ultimately impact in terms of prevention, diagnosis and treatment for people throughout Ireland who are diagnosed with cancer.

What does Patient Involvement mean to you?
Patient and carer involvement in research ensures the patient voice is central throughout the research process. It brings the expert knowledge of researchers into partnership working with patients and carers who are experts in living with the impact of cancer. This partnership working enhances and adds value to the research for benefit to patients and to excellence in health and social care.

Margaret Grayson, IACR PPI 2018-2021

IACR Charity Funding

The IACR is a charity which needs your help to support early-stage oncology scientific researchers

What's On? IACR 2023 Agenda

Download the initial draft of the IACR BioMedical agenda for our 59th Annual Conference.

Registration/ Membership for IACR 2023

Registration for the 59th Annual Conference in the Radisson Blu hotel, Athlone is Now Open.

EACR Membership is Included

The IACR is an affiliated national society and its members benefit from full membership of the EACR.

Late Breaking Abstracts in Now OPEN!

Biomedical Session Abstracts

Deadline: Midnight, Friday, 20th January 2023

Please note:
- Patrick Johnston Lay submission category is now closed
- Late Breaking Abstracts submitted to the Biomedical Sessions will be considered for Display Poster Presentation. 

Social Nursing and Allied Health (SNAH) Abstracts

Deadline: Midnight, Monday, 9th January 2023

SNAH abstract submissions will remain open until Monday 9th January.

Any questions?
Please contact Sinead on: sinead@sineadcassidy.com

Contact Us

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Contact Us
Irish Association for Cancer Research
9A Coolkill, Sandyford, Dublin 18

T: +353 (0)1 295 8859
E: info@iacr.ie

Irish Association for Cancer Research (IACR) is a registered charity on the Register of Charitable Organisations.

Registered Charity Number (RCN): 20030117

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