PPI Council Champion
I was diagnosed with Breast Cancer in 2017. I am passionate about using my life experiences and work skills to make a positive impact. I recognise that I occupy a unique role as a patient advocate, designer, and researcher.
PATIENT ADVOCATE + PPI EXPERIENCE
- European Patients’ Academy on Therapeutic Innovation (EUPATI)
I am currently undertaking the EUPATI Patient Expert Training Programme
- Irish Association for Cancer Research (IACR)
I joined in 2018 as one of founding PPI council members. I designed the new IACR branding, built the website and create all the annual conference collateral. I assist academics to effectively communicate their research to the public. In 2022 I was appointed IACR PPI Champion. In 2023 I am leading a new PPI initiative at the annual conference; a dedicated IACR PPI session to foster future research partnerships between researchers and people affected by cancer on the island of Ireland.
- Irish Cancer Society (ICS)
I have been involved in several national media campaigns with ICS. I am co-facilitator on the ICS PPI Training for Researchers workshop and a recipient of the Patient Advocate in Cancer Research Champion Award. I am a funding application judge and have reviewed 4 PhD/Post Doc funding applications, the annual PhD Lay Abstract awards and the recent €4m Collaborative Cancer Survivorship Research Centre Grant.
- Breakthrough Cancer Research (BCR)
My story has been used campaigns to promote the celebration of survivors and their lives after cancer. I assist academics in their lay communications and have given presentations on infographic best practise.
- Patient Voice in Cancer Research (PVCR) + PPI Ignite @ UCD
As a patient partner I have participated in communication and innovation workshops.
My experiences with Breast Cancer and Patient Advocacy empowered me. It led me to pursue a Master’s in Design Thinking Research and my UCD Research Assistant role. My research is focused on The Information Deficits Experienced by people affected by Breast Cancer in Ireland.
- Paper 1: An Investigation into the Information Deficits Experienced by Breast Cancer Patients in Ireland: The Patient Perspective
Qualitative: A thematic analysis (TA) of 10 interviews and two workshops. The TA is presented with visual artefacts depicting the patient journey: Personas, Empathy Maps, Stakeholder Maps, Journey Maps.
- Paper 2: An Investigation into the Information Deficits Experienced by Breast Cancer Patients in Ireland: The Gaps in Online Content.
Qualitative + Quantitative: Using the key themes from TA in Paper 1 a Competitive Analysis Usability Test was conducted to examine the User Experience and Quality of Content on 8 x cancer information websites
I am a senior graphic designer with UX/UI skills who has amassed over 18 years’ experience as an in-house designer, manager, and freelancer. I have worked on the creative, client facing and administration sides of the design business.
My capabilities include Branding, strategy, and campaigns. Visual communications, website, environmental design. Leading research, facilitating workshops, idea generation, presenting concepts, creating prototypes, and evolving designs all the way through to development. I have worked with patients, public, researchers and professionals and guided those who have no experience through the design process. I support clients every step of the way through using a human centred and design-led approach.
My diverse range of clients include global high end corporate and luxury brands, international NGOs, health and wellness, tourism and sports sectors and SMEs. These are based in Ireland, the UK, Africa, Australia, and New Zealand.
IACR 2023 Carer’s Bursary €300
Apply for funding towards additional costs of care while attending conference. Five Bursaries Available.
Registration/ Membership for IACR 2023
Registration for the 59th Annual Conference in the Radisson Blu hotel, Athlone is Now Open.
EACR Membership is Included
The IACR is an affiliated national society and its members benefit from full membership of the EACR.
Biomedical Session Abstracts
Deadline: Midnight, Friday, 20th January 2023
- Patrick Johnston Lay submission category is now closed
- Late Breaking Abstracts submitted to the Biomedical Sessions will be considered for Display Poster Presentation.
Social Nursing and Allied Health (SNAH) Abstracts
Deadline: Midnight, Monday, 9th January 2023
SNAH abstract submissions will remain open until Monday 9th January.
Please contact Sinead on: firstname.lastname@example.org
Irish Association for Cancer Research (IACR) is a registered charity on the Register of Charitable Organisations.
Registered Charity Number (RCN): 20030117